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Read the stories of people who've been helped by Changing Faces

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Mikaela’s Visible Difference Story

20 Aug 2019

Mikaela is 28 and has a a genetic disorder called Crouzon syndrome which affects the shape of the head and face.

Currently disabled people are not cast in roles on stage and screen at all. They are not even cast as disabled people, and instead able-bodied actors are used in their place.

 

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Phil’s Visible Difference Story

18 Jul 2019

Phil Gorf, who’s 52, and from Newport Pagnell was born with a birthmark that covers three quarters of his face and parts of his body.

It’s taken seven or eight years for me to deal with that stuff so that it doesn’t affect me as much. I have coping strategies now.”

 

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Rory’s Visible Difference Story

18 Jul 2019

Rory, is 25 years old, from Scotland and is an active campaigner for Changing Faces. He has a large facial birthmark.

It breaks my heart that there are people still having to go through similar experiences to me.

 

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Kaylin’s Visible Difference Story

18 Jul 2019

Kaylin is 23 years old, from Glasgow and was born with a facial cleft which affects the right side of her face

One person who used to be my best friend wrote a status on Facebook comparing me to the character Sloth from the film The Goonies. I have never spoken to that friend again.

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Hannah’s Visible Difference Story

18 Jul 2019

Hannah is 15 years old, she’s from Biggar in Scotland and is a member of of the Changing Faces’ Youth Action Group. She has Sturge-Weber syndrome and a birthmark that covers 50% of her face and body.

In high school you have to fit in, you have to look the same, and if you don’t then people will make a fuss.

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Catrin’s Visible Difference Story

18 Jul 2019

Catrin is aged 25 and from North Wales. When she was 19 she was in a coach crash in which she sustained 96% burns across her face and body. She’s now a model for Avon.

I want to challenge people’s stereotypes or perceptions of people being scarred, that somehow they are bad or negative and start a conversation about it.

 

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David’s Visible Difference Story

18 Jul 2019

David is 11 years old, from Denny in Stirlingshire. He has a skin condition called Bullous Ichthyosiform Erythroderma, which means he has blisters over his body. 

For anyone else struggling with a visible difference I would remind them that no one is a monster, we are all just humans. If you have some friends, stick with them. If someone is unkind just remember you are the better person, and we are all fabulous in our own special way.

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Ruyuan’s Visible Difference Story

18 Jul 2019

Ruyuan is 15 years old, from Edinburgh and was born with a strawberry birthmark on her face.

I am not defined by the way I look, and I want to be a role model for other children and young people with visible differences.

 

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