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Read the stories of people who've been helped by Changing Faces

Your Stories

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Hannah’s Visible Difference Story

17 Oct 2019

Hannah is from Birmingham, and was born with a complex condition called Craniosynostosis which affects her skull, jaw, fingers, toes and speech.

I was very badly bullied at school and college due to my visible difference. I was called so many names every single day. If you’re reading this and recognise some of the experiences I’ve had, remember you are a wonderful person, you are unique, and being unique is awesome!

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Lottie’s Visible Difference Story

17 Oct 2019

Lottie is 13 years old and from Tunbridge Wells. She has a rare bone disease called Fibrous Dysplasia which pushes one of her eyes lower than the other.

I just want to keep acting and showing people just because you look different it shouldn’t ever stop you from going for what you want in life.

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Georgie’s Visible Difference Story

17 Oct 2019

Georgie is 25 and from Oxford. She has Klippel Trenaunay Syndrome, which means her right leg and foot are swollen and noticeably bigger.

It’s really difficult to know when to tell a future or current employer about my illness. In one place where I worked, they wouldn’t buy me a stool  I needed because it wasn’t in their office supplies catalogue.

 

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Jude’s Visible Difference Story

09 Oct 2019

Jude is 26, from Glasgow and has psoriasis. She is an active campaigner for Changing Faces in Scotland.

I became very insecure, constantly felt like everyone was looking at me, paranoid. All this resulted in my depression and anxiety getting much worse.

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Mikaela’s Visible Difference Story

20 Aug 2019

Mikaela is 28 and has a a genetic disorder called Crouzon syndrome which affects the shape of the head and face.

Currently disabled people are not cast in roles on stage and screen at all. They are not even cast as disabled people, and instead able-bodied actors are used in their place.

 

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Phil’s Visible Difference Story

18 Jul 2019

Phil Gorf, who’s 52, and from Newport Pagnell was born with a birthmark that covers three quarters of his face and parts of his body.

It’s taken seven or eight years for me to deal with that stuff so that it doesn’t affect me as much. I have coping strategies now.”

 

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Rory’s Visible Difference Story

18 Jul 2019

Rory, is 25 years old, from Scotland and is an active campaigner for Changing Faces. He has a large facial birthmark.

It breaks my heart that there are people still having to go through similar experiences to me.

 

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Kaylin’s Visible Difference Story

18 Jul 2019

Kaylin is 23 years old, from Glasgow and was born with a facial cleft which affects the right side of her face

One person who used to be my best friend wrote a status on Facebook comparing me to the character Sloth from the film The Goonies. I have never spoken to that friend again.

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