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Condition-specific organisations

Links to condition-specific and other useful organisations for people living with a visible difference, grouped to help you find what you need.

Our advice and guidance pages are full of advice to help you live life with a visible difference. However, you may be looking for information specific to your particular visible difference or disfigurement.

There are plenty of organisations who support people living with different kinds of visible difference. They can help you understand your condition, mark or scar so you can manage your visible difference more easily, talk to others about it, prepare for medical appointments and get the right support and treatment for you. We have listed some of them in alphabetical order below. Click on the links to visit their websites.

We have also included links to other organisations you might find useful, on topics such as general health information and mental health as well overseas organisations.

Finding out about your visible difference

Being well-informed about your condition, mark or scar may help you to better understand, cope or manage your visible difference. Having knowledge can assist in making treatment decisions and feeling more in control of what is happening to you. It can also be useful when you are talking about your appearance to other people.

Sometimes medical jargon can be confusing and it can feel like a lot to take in when you talk to a health professional. Understanding the ins and outs of your visible difference and what may happen in the future can feel overwhelming, especially when discussing treatment and deciding what is right for you. You might also like to do some research to find out more about your condition and treatments. The NHS website has information about conditions and treatments and making the most of your appointment.

We have more information to help you learn about your visible difference on our site:

There are lots of specialist organisations who can help you learn more about your condition, mark or scar. They can also help you understand the medical jargon you may be struggling with and may also be able to help you find out about treatment options. We have listed some of these organisations below.

Condition-specific organisations

General health information

Crisis and urgent

Mental health

Online support communities

Self-help tools

Professional bodies

Young people and families’ mental health and wellbeing

Overseas-based support

Advocacy, legal and social care organisations

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Types of visible difference

We group the main types of visible difference and disfigurements into broad categories and provide links to real stories and further information.