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Nearly one in five people in the UK self-identify as having a visible difference according to research conducted by Savanta ComRes. But what does having a “visible difference” actually mean?
We use various terms throughout this website, including “visible difference”, “looking different” and, when appropriate, “disfigurement”. On this page, we explain what we mean by the term visible difference and the impact looking different can have on a person’s life.
No two people are the same. We are all unique in some way. For example, we have different personalities, styles, likes and dislikes.
At Changing Faces, we describe visible difference as a scar, mark or condition on your face or body that makes you look different.
This can be something you are born with (the medical term for this is “congenital”) or it could occur or develop during your life. Anyone can be affected by a visible difference, at any point in their life.
- A condition that changes the shape, size, feel or look of the face or body, or how it functions, such as vitiligo, psoriasis or alopecia.
- A part of the face or body that is different, such as a birthmark, cleft lip or having fewer fingers on one hand.
- Scars, burns or changes to the face or body from an accident, an act of violence or self-harm. These can also occur because of an illness, treatment or operation – for example, due to cancer.
For more examples, please see the types of visible difference page.
People use a variety of words to describe themselves. They may say they “look different”, or have a “difference”, a “disfigurement” or an “altered appearance”. Many people prefer to use the name of the condition, mark or scar – for example, Treacher Collins syndrome, scarring, rosacea or neurofibromatosis.
“Disfigurement” is not a description preferred by many people who have a visible difference. It is mainly used in medical or legal environments. The term disfigurement is used in the UK’s Equality Act 2010 to protect people with “severe disfigurements” from discrimination.
The words you use to describe your difference are up to you and depend on what you feel comfortable with.
How people feel about their appearance varies considerably. Some people are proud of their visible difference and live fulfilling lives. Others find it emotionally challenging and that it limits what they want to do or feel they can achieve. Some people may struggle with a particular area of life. These feelings also may vary from day-to-day.
The impact a visible difference has on a person does not always match the severity or extent of the difference or how visible it is to others. For example, someone with a scar on their leg may feel it impacts their life just as much as someone with a visibly large birthmark on their face.
If you have a visible difference, you are the only one who can judge the impact it has on your life.
The emotional impact
While most people feel self-conscious at times and worry about how they look, having a visible difference can intensify these feelings. This can affect how you feel about yourself. It may make you feel upset, anxious, embarrassed, or less confident at times. You may even avoid meeting new people or going out because you are worried people will stare or say hurtful things to you.
When we are feeling less confident, it is easy to focus on all the things we feel are “wrong” about ourselves and not the positive aspects of who we are.
Our advice and guidance section covers a range of issues, from increasing your confidence and self-esteem, to coping with people’s reactions, relationships and working when you have a visible difference.
Impact on health
Many people with a visible difference also have a medical condition. This can present its own challenges. For some conditions, marks or scars there are medical or surgical treatments that can make the difference look less noticeable. However, in many cases, this is not possible.
Impact on education, work and relationships
Looking different can impact all areas of your life, including work, career and relationships. Our 2017 report Disfigurement in the UK surveyed people with a visible difference and found that:
- Four in 10 people with a disfigurement say their appearance affected how well they did at school.
- Almost four-fifths (79.5%) have avoided applying for a job because they thought their appearance would hinder them at the interview, or because new colleagues would make them uncomfortable.
- More than four-fifths (81.3%) have experienced staring, comments or unpleasantness from a stranger.
- Six in 10 (60%) respondents said that they had avoided dating or going on a date because of their appearance.
Some people with a visible difference struggle to come to terms with their appearance or go through periods of finding it hard to cope. For example, you may:
- Have a lack of confidence and low self-esteem.
- Feel unhappy or anxious and want to avoid the activities you enjoy, such as meeting up with friends and family.
- Feel self-conscious, shy, embarrassed or like you are on show all the time.
- Feel isolated and alone – like you are different to, or even rejected by, other people.
- Feel upset, angry and defensive.
- Be unable to concentrate properly, have problems sleeping or experience nightmares or flashbacks.
- Feel like there is something wrong with you and worry about how you look a lot.
If you experience any of these issues, please don’t struggle alone. You can contact Changing Faces for support, or to help you talk to your GP or another professional.
If you are really worried about your mental health, experiencing a high level of distress or feel you are not coping, we strongly encourage you to contact your GP.
We know that coronavirus (COVID-19) has had a profound effect on the lives of people with visible differences. To support you, we have created new resources to support you during this time.