Providing support and promoting respect for everyone with a visible difference

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Real stories

Read or listen to real stories from people affected by visible difference, their parents and families, as well as Changing Faces staff and volunteers. Inspired to share your story? We’d love to hear it – share your story now.

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Lola is a teenage girl with goldenhar syndrome, resulting in a facial difference. She has long blonde hair and takes a selfie

Lola’s story: Growing up as a teenager with Goldenhar syndrome

Lola shares what it's like being a teenager with Goldenhar syndrome and a visible difference. She reflects on living with vision and hearing differences, dealing with staring, finding confidence, and the support that helped her accept herself.