Savannah’s story: “Navigating life with NF2”
Savannah has found life with NF2 challenging. Counselling from Changing Faces has enabled her to take steps forward to a brighter future.
Read or listen to real stories from people affected by visible difference, their parents and families, as well as Changing Faces staff and volunteers. Inspired to share your story? We’d love to hear it – share your story now.
Savannah has found life with NF2 challenging. Counselling from Changing Faces has enabled her to take steps forward to a brighter future.
Sarah shares her journey of living with a facial difference. Today, she’s rebuilding her confidence after facial surgery and hopes to encourage others to see their true worth beyond appearance.
Lis became isolated and struggled with her new appearance after having skin grafts on her eyelids. Changing Faces’ Skin Camouflage Service has helped her to rebuild that lost confidence.
John has a Cavernous Haemangioma Lymphangioma. While it has impacted him emotionally and physically, he makes sure it doesn’t stop him enjoying life.
After developing hyperpigmentation on her face, Carla lost confidence. Changing Faces’ Skin Camouflage Service has helped her to regain it.
Kaitlyn shares Oscar’s journey of starting school with Goldenhar syndrome, highlighting the challenges and successes along the way. From navigating visible differences to building an inclusive learning environment, Oscar’s story offers hope to any parent raising a child with Goldenhar Syndrome.
Campaigner Ellie talks about the difficulties that come from selfie culture when you have a visible difference, from feeling you need to hide your true self to being censored.
Gemma has ptosis due to Noonan syndrome. She’s battled with her self-esteem, but this hasn't stopped her from pursuing a career teaching others to use their voice confidently.
Nicky shares the challenges and triumphs of her daughter Isla’s school experience, highlighting the urgent need for true inclusion, awareness, and understanding of disability in schools.
Joti has been a teacher for over 20 years. She talks about how teaching secondary school students about visible differences is vital to improving acceptance.
Kate is a primary school teacher who also has a visible difference. She provides her tips on how primary schools can support children with visible differences.
Jo grew up with a birthmark on her lip. At the age of 18, she developed a vascular anomaly on her cheek. It’s been challenging to accept her differences, but she hopes that sharing her story will make others feel less alone.