My name is Sneha, and I’m a dancer, musician, and early years educator. I have a passion for Bollywood and Kathak dance styles, as well as Hindustani classical music. I’m currently working in a preschool and pursuing a foundation degree in early years.
While my case of craniofacial dysplasia could be considered milder than others, it has still had a significant impact throughout my life. When I was born, I also had a diaphragmatic hernia, which was repaired through surgery when I was just four days old. This surgery left a scar on my stomach, serving as a reminder of the challenges I’ve overcome from a young age.
My journey with craniofacial dysplasia has involved numerous surgeries and countless visits to Great Ormond Street Hospital, where I have been fortunate to be under the care of an amazing multidisciplinary team. I have had head surgeries, eye surgeries and orthodontic procedures in preparation for upcoming jaw surgery, as well as many outpatient visits. While each surgery came with its own challenges, I’ve persevered and continue to make progress. Alongside all these medical procedures, I’ve also navigated the ups and downs of school, social interactions, and life outside of the hospital.
Sneha has had to go through surgeries since she was a baby
Throughout my childhood, I encountered people who would ask probing questions about my appearance, from acquaintances to new friends, with one particularly persistent boy at my swimming lessons standing out in my memory. These questions would range from ‘What’s wrong with your face?’ to ‘Why does your nose look like that?’ These experiences, though challenging, have helped me to develop my resilience and perseverance.
In addition to the physical challenges of craniofacial dysplasia, I also struggled with learning in school. It was difficult for me to grasp and remember information, and I felt that my school’s support failed to work in my best interest. Following SEND testing, I was eventually dismissed with the explanation that I simply had a ‘lazy brain’, not addressing the underlying issue.
My desire to become a teacher came from my own experiences. Not only the negative ones, but also the love and support I received from many of my teachers, who made me feel valued. They inspired me to give the same encouragement to future generations.
I have learned that true beauty lies in character, kindness, and inner strength.
I am proud to be part of my mum’s music and dance academy, where I teach Hindustani vocals to young children. I have been fortunate to perform at prestigious cultural events such as Diwali in Trafalgar Square, which has brought me great joy and fulfilment.
My passion for performing has led to unforgettable experiences – being on stage gives me a sense of connection and confidence, and the applause validates the work that goes into each performance. Performing has taught me that everyone deserves to be seen and heard, regardless of appearance or challenges.
My family, especially my mother, has been my greatest source of strength. Her constant advocacy and belief in me helped me overcome doctors’ predictions that I would live in a wheelchair with a feeding tube. With the support of my parents and sister, they have helped me to grow stronger and more confident in embracing my unique features.
Despite the challenges I’ve faced, I’ve also learned that some struggles are a part of the human experience. This understanding has helped me find comfort and connection with others, reminding me that I’m not alone in my journey. Reflecting on my experiences, I have learned that true beauty lies in character, kindness, and inner strength, and I hope my story encourages others to embrace their individuality.
