Lottie is 13 years old and from Tunbridge Wells. She has a rare bone disease called Fibrous Dysplasia which pushes one of her eyes lower than the other.
I just want to keep acting and showing people just because you look different it shouldn’t ever stop you from going for what you want in life.
Hi, I’m Lottie I have a rare bone disease called Fibrous Dysplasia which is pushing one of my eyes lower. I had a big operation when I was 7, I’m 13 now and will have to have another one, one day.
I get stared at and have had people call me names, like wonky donkey. I’ve not let these things stop me in doing what I love in my life which is acting, singing and dancing.
I still go for auditions and do feel a little more nervous as sometimes people will look at me just that bit longer than normal. I’ve played Lavender in Matilda the musical in the West End and did the Sainsbury’s Christmas advert.
I just want to keep acting and showing people just because you look different it shouldn’t ever stop you from going for what you want in life. I’ve got brilliant friends who stick up for me when things get a bit tough! I would rather people spoke to me and asked why I look like I do so I can explain to them rather than whispering and pointing.
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