Everything that Changing Faces does is based on rigorous academic and organisational evidence

Research and evidence

Changing Faces’ work is based on academic research and organisational evidence

Evidence shows that people with disfigurements are likely to experience emotional, social and psychological difficulties as a result of their visible difference, which is sometimes combined with functional impairments.

People respond and adjust differently to a changed appearance, which depends on factors such as age, ethnicity, gender, cause, etc.. Some of the available evidence is general whilst the other is condition specific; there is local, national and international research.

The Centre for Appearance Research (CAR), based at the University of the West of England (UWE) acts as a focus and centre of excellence for psychological and interdisciplinary research in appearance, disfigurement and related studies.

CAR and Changing Faces have worked in partnership to make a real difference to the lives of the many hundreds of thousands of people with appearance-related concerns both in the United Kingdom and across the world.

For a recommended academic reference list please click here.

View articles and references published by the Centre for Appearance Research.

Examples of Changing Faces’ involvement in research projects:

  • Our policy adviser in health was involved in an orbital exenteration research project into the psychological needs of patients by the Royal Eye Hospital in Manchester.
  • We have provided input on the psychological needs of patients into a project to establish research uncertainties in vitiligo. This project was undertaken by Nottingham University in cooperation with the James Lind Alliance.

Sharing requests for research participants

We regularly receive requests from researchers asking if we can share calls for evidence and participants via our website and social media channels. Whilst we are keen to support research that will contribute to understanding of disfigurement, we subject all requests to an approvals process.

To seek approval, please send your full research proposal, together with proof of ethics committee approval, by email to Pippa Donovan, Director of Services and Innovation. Please note that this process can take up to four weeks.