Many parents remember this time as the most difficult stage in their child’s life because you have to absorb so much new and complex information and have to deal with many conflicting emotions.

Your child may have needed medical treatment at birth or soon after or be facing treatment throughout childhood. You may have a clear picture of how your child’s condition or difference will affect her or this may still be uncertain. You may be feeling left out whilst other people take care of your baby. You might have lots of support or you might feel hurt or surprised by the reactions of medical staff, friends and family.

Just as every family’s experience is different, so too are the ways that families start to move forward. We speak with many parents at this time and can support you by listening to you and offering some practical suggestions. We can help you with:

• Finding out more about your baby’s condition and treatment
• Coping with the way you are feeling
• Caring and comforting your baby when she is in hospital and when she comes home
• Caring for yourself and each other
• Responding to your baby if she is unable to smile, cry, see or hear
• Introducing your baby to family and friends
• Taking your baby out
• Introducing your baby to her visible difference in a simple, open way
• Supporting your other children
• Thinking about your child’s future.

These issues are also addressed in our guide: When your baby looks different. You may find some of the suggestions and advice of comfort and benefit.