Medical
information
Finding out about your child's condition and its treatment or management can be a bewildering experience.
Equally, if your child has a congenital condition, he or she may have been having treatment throughout their childhood and be questioning whether or not to continue.
Changing Faces can direct parents to services which can help you find out more about a condition and its medical treatment prior to your consultation as well as suggesting some questions you could put to the specialist.
Changing Faces cannot give answers to condition specific medical enquiries or recommend particular treatments or practitioners. We can however, suggest ways of finding out more about a condition and its medical treatment or management.
Changing Faces is in touch with many support groups representing numerous different conditions. Many of these groups have up-to-date and extensive information about a medical condition and the treatments available. We can give you contact details for these groups.
If you plan to use the Internet to find out more about your child's condition and treatment options it is especially important with medical information that the website providers ensure all material is accurate, relevant and up-to-date. We also advise you to check that the information is provided by the Department of Health or a professional body such as the British Association of Aesthetic Plastic Surgeons, the British Association of Oral and Maxillo-facial Surgeons or the British Association of Dermatologists.If you are not going through one of these bodies, it is worth checking the website you are visiting is independent and not necessarily linked to a pharmaceutical company (although some organizations rely on these companies to exist).
Remember that conditions and injuries affect children differently and certain treatments may be more or less appropriate for your child. It is worth printing off the information that you have found and discussing your findings with your health care professional.
To contact us about finding our more about your child's medical condition and its treatment or management please call 0845 450 0275 or email us at info@changingfaces.org.uk
Your Comments
First Name, Ag, Location
Experience
jane, Ag, south west england
Experience.. my daughter was born with a complete cleft palate and pierre robin sequence, which means she has a small chin and an overbite. but she is beautiful and kind, funny and sweet, and so affectionate and loving. she is 9 now and her teeth are quite crooked but she will have a brace to try to correct that in a couple of years. her cleft palate was repaired when she was 1 year old and she is due to have a further operation next year to lengthen her soft palate. she looks so beautiful to me and i think beauty comes from differences and unusual faces and inner love.
Roma, 26, Jamaica
I was born with clef palate, and for 25yrs of my life i speak funny people laugh, stare, mock the way i speak . But you know what i learn all these years its doesnt matter what people think or say about you, Your'e disabilities does not determine your futher only if you allow it to, each time someone laugh at you that should make you more stronger and determine to prove to youre self and also them that because youre different that doesnt make you less of a person. Remember this God only use unique people with good hearts. People who laugh at people's disabilities are heartless i would rather talk funny for the rest of my life and be a kind and loving person toward people than to look or talk perfect and have a bad heart. Peole with disabilities are more loving it like this peace dwell over them no matter how they look you can help but love them and they have this joy about them there spirits are so genuine. Mothers love youre children no matter how they look or talk just raise them up to be the best that they can be and dont ever get angry at God cause he have giving you an angel love the child and not the way he or she look like, and if you watch that child closly he or she can teach you how to appreciated life more. P.s these parents get angry when people laugh at there child or would they prefered that is was there child laughing at someone elses child, think about it do you want to have a normal looking monster or a disable angel.
Donna Pooler, 35, West Midlands
My daughter has a large port wine stain on her face due to Sturge Weber Syndrome.She is outgoing,vivacious,happy and extremely confident.Due to her learning difficulties she doesn`t notice the stares,nudges and comments people make when we go about our day to day lives in fact in one instance she laughed with the people making fun of her which as you can imagine made me very sad. But out of all the sadness comes much joy seeing my daughter confident and happy and up there with the best of them attempting any challenge or opportunity that comes her way in life. Don`t hold back be strong and live your life to the full!
sharon, 32, durham
MY DAUGHTER WHO IS 7 MONTHS OLD HAS A SMALL PORT WINE STAIN ABOVE HER TOP LIP ,GENERALLY CHILDREN ASK OUTRIGHT WHAT'S THAT ON HER FACE? WHICH IS FINE BECAUSE GENERALLY THEY ARE CURIOUS AND THEN MOVE ON.HOWEVER SOME ADULTS HAVE BEEN QUITE BLUNT IN THEIR COMMENTS WITH ONE WOMEN TELLING ME I HADN'T CLEANED HER FACE VERY WELL OR I GET "IT'S SUCH A SHAME"WELL NO IT ISN'T ACTUALLY BECAUSE SHE IS BLOODY GORGEOUS!!!!!!!!!!!!!.IT'S SO ANNOYING AND RUDE,SOME PEOPLE NEED TO ENGAGE THEIR BRAINS BEFORE SPEAKING OR I MIGHT FORGET TO ENGAGE MINE ONE DAY.
Rachel Adam Smith, My, Live Redhill, Surrey
Watched This Morning. My daughter's face is not symmetric and she has some special needs and can't talk. I found the programme very interesting and very important. My daughter was barred from sports day because the schools attitude was Year 2 boys will say horrid names and parents might laugh, I couldn't quite understand it, why would they laugh at a child that has survived against the odds. Children at the school stare at her and say nasty things. It is really important to try and get these children to stop staring. It is very upsetting and as a result she doesn't get included into things. It is important parents talk to their children.. but most of the time they are too busy with their lives that are fine to be bothered explaining an important thing as to not to stare and to include children whatever they may look like. Thanks
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