The following links or contact details provide information, support and advice on issues that are relevant to people who have disfigurements and their families.
Advisory Centre for Education
The Advisory Centre for Education (ACE) is an independent advice centre for parents, offering information about state education in England and Wales for 5-16 year olds. They offer free telephone advice on many subjects like exclusion from school, bullying, special educational needs and school admission appeals.
General advice line: FREEPHONE 0808 800 5793.
Department for Children, Schools and Families
Bullying UK
Practical help and advice for parents and children who are tackling bullying at school.
Kidscape
Offers children, parents and teachers advice and resources on dealing with bullying.
Children in the Picture
In the Picture is a new initiative from Scope which aims to promote the inclusion of disabled children in early years picture books.
Skill: National Bureau for Students with Disabilities
Skill is a national charity promoting opportunities for young people and adults with any kind of impairment in post-16 education, training and employment.
For Parents by Parents
The site aims to give an honest view of parenting. It also contains a comprehensive listing of support organisations for children who have special needs.
Parents at Work: Children with Disabilities Project
Self-help group for working parents of children with special needs.
Tel: 020 7628 3565
Parentability
A national network of disabled people who are or hope to become parents.
Tel: 020 8992 8637
Disability Alliance
Publishes the Disability Rights handbook and other guides, briefings and policy papers. They also provide information about rights and campaign for improvements in disability benefits.
Equality and Human Rights Commission
The Disability Rights Commission provides advice and information to disabled people, employers and service providers and supports disabled people in obtaining equal rights and opportunities under the Disability Discrimination Act 1995. It also provides an independent Disability Conciliation Service for disabled people and service providers through Mediation UK. It produces policy statements and research on disability issues; and publications on rights and good practice for disabled people, employers and service providers.
Helpline Tel: 08457 622 633
Text Phone: 08457 622 644
Email:
enquiry@drc-gb.org
Relate
Relate offers advice, relationship counselling, sex therapy, workshops, mediation, consultations and support face-to-face, by phone and through their website.
Outsiders
Outsiders is a nationwide, self-help community providing regular mailings, and unthreatening events where people meet up and practice socialising.
www.childrenfirst.nhs.uk
Comprehensive nformation for children, young people and parents about health care and going into hospital with real life stories.
www.actionforsickchildren.org
Comprehensive information for parents, children and young people about what to expect from hospital and preparing for treatment.
NHS Choices: facial disfigurement
Confidence-building tips, advice about handling people's reactions and considering surgical options, including birthmarks and scars.
Young Carers
A website for young people who care for a sick or disabled family member.
Childline
Gives information about their 24 hour helpline for children and young people who want to discuss any problem. The website also has a "boys only" area with an agony uncle to answer questions.
there4me.com
If you've got worries or need some advice, There4me.com can help 12-16 year olds find solutions to their problems. The site is run by the NSPCC.
RU-OK
RU-OK helps teenagers to use their strengths and help themselves to cope with common and sometimes serious problems.
Connexions
Connexions is a service for 13-19 year olds, helping teens to get where they want to be in life. Teens can also email and speak to advisers and get lots of info on issues such as work and training and local services for young people.
Young Minds
YoungMinds campaigns for children's mental health. It emphasizes the importance of recognising when a child is troubled and providing adequate support before their problems escalate out of control. Its website provides information for both parents and young people as well as details of their helpline service.
Youth Access
The Youth Access website provide information on local services available to young people, including counselling, advice, information, outreach, and personal support (drop-in, befriending, informal support and sexual health.