Acoustic Neuroma

British Acoustic Neuroma Association

Allergies

British Allergy Foundation

Allergy UK

Alopecia

Action against Alopecia
Tel: 01323 412 723

Alopecia Awareness

Alopecia UK

Hairline International

Behcet's Syndrome

Bells Palsy

Bells Palsy Association

Birthmarks

Birthmark Support Group

Congenital Melanocytic Naevus (CMN)

Body Dysmorphophobia

Anxiety UK

Burns

Burned Children's Club

B U G S (Burns Unit support Group)

The Children's Fire and Burn Trust

The Burns Support Group Database

Cancer (all types)

Cancer BACKUP

Cleft Lip and Palate

CLAPA (UK) and Left Clip (a forum for young people who have a cleft lip/palate)

Cleft Lip and Palate Association (Northern Ireland)

Face Forward ( a forum for people who have a cleft lip/palate)

Craniofacial Conditions

Headlines

Craniofacial Society of Great Britain

Cystic Hygroma and Lymphangioma

Cystic Hygroma and Lymphangioma Support Group
Tel: 01444 461 155 or 0113 236 1084

Eczema

Eczema Society

Eczema Voice Discussion Board

Ectodermaldysplasia Society

Ehlers Danlos Support Group

Epidermolysis Bullosa

DEBRA

Goldenhar Syndrome

Goldenhar Family Support

Gorlin Syndrome

Gorlin Syndrome Group

Herpes Viruses Association

Hirsutism

The Face Institute, the Hirsutism Society and the Polycystic Ovary Syndrome Association
Tel: 01223 440 327

Hyperhidrosis

Ichthyosis

Ichthyosis Support Group

Limb Loss (including fingers and thumbs, hands, arms, toes, feet, legs)

National Limbless Association

Lymphoedema Support Network

Lupus UK

Microtia

Microtia Mingle

 

Reach
Tel: 0845 130 6225

Nager Syndrome: NaSA

For support group details call:
Tel: 0161 643 9186

Neurofibromatosis

Neurofibromatosis Association

Pituitary Disorders

Pituitary Foundation UK

Post Traumatic Stress Disorder

For information about the treatment and management of PTSD visit: www.uktrauma.org.uk

Proteus Syndrome

Proteus Family Network

Psoriasis

Psoriasis Association

Retinoblastoma

Childhood Eye Cancer Trust (CHECT) formerly the Retinoblastoma Society
www.rbsociety.org.uk
www.chect.org.uk

Scarring

Scar Information Service

Scleroderma Society

Shingles Support Group

 

Skin Camouflage

Bristish Association Of Skin Camouflage

British Red Cross

Skin Camouflage Network

Stickler Syndrome

Stickler Syndrome Support Group

Sturge Weber Syndrome

Sturge Weber Foundation

Treacher Collins Syndrome

Treacher Collins Syndrome Support Group

Vitiligo

The Vitiligo Society

Xeroderma Pigmentosum (XP)

XP Support Group

Can't find a support group or organisation for your condition?

If you want to find out more about a condition but a support group is not listed, the following organisations and websites may be of use:

Contact a Family offer a freephone helpline for parents of children with a disability or medical condition. The organisation's information on disabilities and medical conditions is produced by doctors and paediatricians specifically for parents and families.

It also puts families in touch on a one-to-one basis which can be particularly helpful for families caring for a child with a rare condition for which no support network exists.

The national helpline number is 0808 808 3555.
Opening hours are 10:00am - 4:00pm, Monday to Friday

www.self-help.org.uk
to find out more about a medical condition

www.healthfinder.gov
to find out more about a medical condition

If your child has a condition or a number of symptoms that cannot be identified, a support group called Syndromes Without a Name (SWAN) can offer information and advice. Visit them at www.undiagnosed.org.uk

www.which.co.uk/cosmetic
Which? offers online advice on cosmetic treatments and surgery. As well as providing tips and information to help people keep themselves safe the Which? website offers advice on how to take action if you are unhappy with a cosmetic treatment or surgery.

Worldwide Condition-Specific Groups and Organisations

Acoustic Neuroma Association (USA)

The Phoenix Society for Burn Survivors

World Craniofacial Foundation (based in Texas)